Just a quick update as there was a lot in the last post We did see an RN yesterday, she did assess for excess urine retention The good news is that he wasn’t retaining…..this can be a dangerous situation so its good we checked He has returned to a bit more normalized mental state, confusion… Read more

Matt’s been sleeping a lot When I say a lot, it may be up to 18 hours a day now I thought this weekend it might have been a reaction to having so much stimulus last week There was Wednesday’s World Cup game when Corny, Jim and Terri came over The game, conversation, energy were… Read more

Ok, our 4 legged peach picker is now a highly annoying 4 legged peach picker So you know the story about her picking peaches and how I had to be her party pooper and put a fence up so she couldn’t get to them…..because they were bad for her in several ways? Well…….by some how… Read more

So many of you ask if there are ways you can help us Sometimes we have the ability to have a discrete answer to that question, often we don’t Today I wanted to let you know of a way to help if you are so wonderfully inclined This blog is about our journey with Lewy… Read more

Take care of yourself is what alot of people advise when you are on this kind of a journey At first, when hit with the news, its hard to even know where to start, what “taking care of yourself” really means By that point, you’ve already so lost yourself, your sense of self By the… Read more

This is what I worry about these days From all we have learned from those who have tread this path before us, there will be something that happens in the future that will send Matt down a slippery slope It happens often with diagnosis like his, a virus, an infection, a fall begins that downward… Read more

After yesterday’s post, you might be wondering if we went to the Bands at the Basin I struggled with this decision all morning About noon, I decided if we go, we are definitely going to try to watch from the Petaluma Yacht Club dock, if we can, if not we’d use chairs I’d put in… Read more

Do we live or do we play it safe? Is there a middle ground somewhere? That’s the question I face alot Today, as I write this, Saturday, there is a “Bands on the Bay” event happening in the turning basin in Petaluma BYOFD, meaning: bring your own floatation device Think paddle boards, kayaks, rubber canoes,… Read more

I took a chance last night in my quest to get Matt out a bit more I bought tickets to a local performance called “Radio Recall” It is part of a summer series here in Sonoma, performed in a beautiful outdoor stage as the sun sets The show was a reliving of the “soundtrack of… Read more

Barb came up Tuesday to hang with Matt There is a lot going on in her life, yet she made the time to trek up here to “lay eyes” on her bro We both truly value and appreciate her making time for us Her drive is about 2 hours each way, it would have been… Read more

That’s a pretty big number, if you are counting cantaloups, antelopes, or telescopes Pretty big number in blog posts too, which is what today’s post it…..numero 200 Month 14 as well…..my first entry was June 2025 I think back at all that has changed in those 14 months We were settling into life in Sonoma… Read more

Terri came by yesterday, brought a yummy sandwich for Matt We all sat by the pool and caught up, enjoyed our lunches At some point, Matt got up, he was a little bit anxious He made it a handful of steps and the next thing we new, he was down on the ground He didn’t… Read more

Matt had a great afternoon with his cousins Tuesday First, we dropped by Mag’s Yogurt in Larkspur to taste Elliott’s new Dubai Chocolate flavor My favorite there is always the vanilla with diced almonds But when he has pistachio, that’s my ultimate favorite with almonds added Matt had both kinds of chocolate, regular and Dubai,… Read more

I hope you had as much fun reading the SIPS BOR as I had creating it It genuinely brought amazing levity to my days as that was rolling out and allowed me many moments of rising above all that we deal with daily as we live with Uncle Lewy After the VA trip, Matt was… Read more

This shall be considered Amendment #7 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver shall retain the right to remember that Uncle Lewy is a guest in this household. An unwelcome guest, to be sure. But a guest nonetheless. It is hereby recognized that: Household Standing While it is… Read more

This shall be considered Amendment #6 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver shall retain the right to have dirty dishes located in any room, on any surface, and in any location where dirty dishes would not normally be expected to occur. Protected locations may include: The presence… Read more

This shall be considered Amendment #5 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver has the right to laugh at situations that, by all reasonable standards, are not funny The caregiver may laugh when the remote control is found in the freezer, when furniture is rearranged for the third… Read more

This shall be considered Amendment #4 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The spouse living with Lewy body dementia shall retain the right to erase a substantial portion of the day’s frustrations through the timely application of a sincere hug and an “I love you.” This amendment recognizes that:… Read more