They say that there are 3 main, or top, reasons to consider moving a loved one who has dementia to memory care:
- Wandering
- Incontenience
- Caregiver stress
This is a generic dementia list
What I am discovering is that LBD and “generic” dementia differ in many significant ways
The first item is rarely an issue with LBD, wandering
What is missing in this list is “environment complexity”
I’ve watched, you might call it studied, Matt over the last few days with some intention
What is he drawn to, what is he doing, what is ok, what is not ok?
Things that are not ok:
- Playing with knives
- Messing with Sheba or his medication weekly boxes
- Responding to delusions in a way that puts me in danger
Ok, I expect alarms bells went off in your head just now: how is he making the environment dangerous for me?
Its just a one time thing, so far, but here is what I was specifically referring to:
One night recently, in the middle of the dark night, I was sleeping in the sunroom, him in the master bed room
He got up, wandered
I either heard him or needed to get up myself at some point so I got up and walked into the living room, towards the kitchen
As I stepped, I contacted a small glass prep dish on the floor
It didn’t break, but what the heck was it doing on the floor in the middle of the natural house traffic pattern?
I picked it up, then a few steps later my foot made contact with a wine glass, a delicate stemmed one (again, nothing broke)
Then a few feet later, another glass prep dish
I recall him being available for me to ask “what the heck” to at some point
His response was something having to do with safety, meaning the glass items were put in the path of some sort of delusion he was having, he created hazards to keep him safe from a boogey man of some sort
Like land mines, booby traps for his imagined monster
I now keep shoes by the bed and put them on if I get up in the middle of the night just in case this delusion and solution reoccur
But what will it be next time? How do I guage a unknown like “will there be a next time” and “what will happen next time” and “will I be so lucky next time”?
So the list of reasons for memory care above doesn’t include what I am beginning to believe is the biggest reason we might move him to a memory care facility, this isn’t science, this is just me thinking out loud
Complexity of the environment, that is what might warrant a move for him, IMHO
What I am witnessing is him engaging with an environment that may well be simply too complex
Too many things to process what to do with, or not
Too much noise. What is that noise? What does it mean?
Too many words being spoken all at once, too fast to process
That last bit, the caregiver indicated yesterday that when the house cleaners were here, when they were very efficiently cleaning the entire house (they do a great job); during that time he was anxious, wandering
Maybe he was processing what is going on: Who are these people? What are they doing? Why are they here? What are they saying (mostly spainish)?
I doubt it was a one time process, solution determined, move on thing
It was likely a loop that played over and over until they left
This home we have, this house, this property, may well be simply too complex for him to find comfort in it other than in bed
That may well be enough to justify the move…………or so I am pondering

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