Uncle Lewy

Living out loud with Lewy Body Dementia

Rugs and Art

I am giving a lot of thought to the home environment

Is it too complex for Matt, does it have things that drive anxiety or do these behaviors create a sense of accomplishment for him?

Take this rug as an example

It runs down the hall from our bedroom to the kitchen

He has decided to roll it up numerous times, atleast a dozen times

Why? I asked him once and he said “ you told me too”

Yeah, no, I didn’t….but should I have granted him a sense of accomplishment by saying, “yes, thank you so much, this is so helpful”…..

Of course that is not what I did….. I said in that moment “no I didn’t say that, can you unroll it and put it back?”

Why or why is literal me so hard to retrain, retool?

Or this rug, which is in the entry hallway

When I came home Saturday from my regatta day, this rug was completely upside down

The white backing was showing

Was it the pattern, did that cause some need to flip it over?

Sometimes these things happen while the caregivers are on

Generally I might comment upon entering the house “oh, looks like some redecorating happened” to which they smile, nod and agree

Now that I take a moment to think about this, perhaps I should be asking questions of the caregiver as to how they observed him in the moments before and after this happened

Was he agitated before, did the interaction with the rug calm him, satisfy anything perhaps?

Or was it just one of many things he fiddled with in the environment?

This rug, my rooster, my farm house rooster

I so thought it was fun, the colors, the image

Totally appropriate for the farmhouse vibe

He’s had a bit of a relationship with the rooster

When it was in the kitchen, one of our live-ins thought he might have been afraid of it

(I guess its a good thing I didn’t get the larger 8-10′ version for the kitchen!)

Saturday, he relocated the rooster, albeit face up, into the living room

Is it just the presence of something that stimulates action? If it’s not this thing it would be another thing?

Or is it a specific thing? What are the attributes of things that draw his attention, call out to him to “touch me” “move me” “interact with me”?

Do I simply tolerate that behavior, letting the mystery of what drives him to do a particular thing be a source of entertainment, wonder?

Should I stealthily remove things that are fragile, that have some sort of a value to me and lower my stress so this isn’t such a thing

(That’s easy to answer: yes, a complete no brainer–so like when am I going to take that task on?)

The bigger question looms: how best to think about this behavior?

How do I think about these rugs? Object of change, harmless (except for the fact it could create a trip hazard and has) but better that than pictures on the wall?

To which I can give an example: last night he decided to take a Karen Barbour watercolor off the wall

I caught him in mid-act

It’s a large framed piece of beautiful art with a rich, deep story that goes with it

The glass was just replaced after it fell off the wall because a hook failed and it wasn’t cheap to replace the glass (that move, that hook disaster was on me)

So do activities with the rugs keep him busy enough he doesn’t mess with the art?

Who knows the answers to these questions? Or am I left simply with nothing better than experimentation?

I do worry about the trip hazard risk if he keeps messing with the rugs, but if I do that, do I need to take the art down too?

This is just like that onion Shrek and Donkey talked about “layers, Donkey, onions have layers”

To which Donkey answered “so do parfaits, and everyone loves a parfait”

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One response to “Rugs and Art”

  1. wondrous268336d70c Avatar
    wondrous268336d70c

    I know it is normal for you to wonder what is happening in his brain, but there is no answer to your question. Lewy is making connections that are totally random and unexplainable. No one can tell you what he is thinking when he moves things around and tries to quiet the noise in his mind. Not even him. Love you, sis.

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