If you are landing here, thank you for taking the time to visit.
We are a team of family and friends riding on September 19, 2026, 44 miles for a purpose, a big purpose: supporting the efforts to find a cure!
We have 2 heros: my husband Matt and our nephew Justin
Matt has Lewy Body Dementia
Justin has Parkinsons
They are different diagnosis, but they are much more closely connected than most people realize. Both diseases involve abnormal accumulation of the same protein, alpha-synuclein
Our family experiences both sides of the ugly coin that is the root cause of Parkinson’s and Lewy Body–we live with this reality every day
We also have 2 angels near and dear to us, who both suffered Parkinson’s
Herb and Judy
Herb is Matt’s Uncle, an amazing man, full of life and love–known to make a mean fondue on New Years Eve!
Judy is Terri’s sister who crossed the rainbow bridge just a few months back, her loss is still very very fresh and tender
Matt is my husband and this blog is my way of coping with the impact that Lewy Body Dementia has on our life, his life, my life, our broader family’s life
Written contemporaneously during the days of Matt’s journey, it reflects travel on this road, the hard, the funny, the love, the frustration, it reveals it all
My hope is to keep our family and friends updated as we move along and, someday, maybe help someone else who might be unfortunate enough to find themselves on this road
Our nephew has his own unique story to tell
He is young, so much more life to live, trying to make good choices on the treatment options that can make his quality of life better
Since there is no cure, hope can be easily lost, hope IS lost frequently
Bottom line: we need a cure! Your support of our ride will help capitalize the research needed to get there, to get to a cure, so fewer families have to suffer like we are
Since you are here, reading these words, that means you care
Thank you for caring, thank you for being with us for a moment
Uncle Lewy 