-
Our little girl Sheba has been hurting lately Saturday night, early Sunday morning she yelped out in pain We were on the brink of taking her to the emergency vet…..but as we began to set things in motion, she came out of it, walked around like normal The same pattern repeated Sunday night, Monday early… Read more
-
Things are generally good here, now Some of Matt’s evening behaviors that were so stressful (for me) have calmed down quite a bit, I think it has to do with the shift in med timing, consistency of med taking He still grabs stuff, moves it to places I later find, thinks the trash can is… Read more
-
Our doggie Sheba is a smartie Mary sent a video of her pup Zoey working a dog puzzle Flip a lever, move an obstacle, get a treat, repeat We had to get a puzzle for the Shebs….. While Zoey used paw, nose and tongue Sheba maintained her balance on all four legs, used nose and… Read more
-
Mary sent me a few things today: first, a piece of poetry based on the blog entries so far….. An Ode to Lewy A New Phase begins where the old paths end, Trying to honor the man, our love, our friend. In the quiet of Changes, as things start to shift, We look for the… Read more
-
We went on a hike yesterday, exploring Jack London Park Maybe you have read a book of his, “The Call of the Wild” or “Sea Wolf” or many many others He was a pioneer in writing for a living and some of the things he did on his estate, ranch in Glen Ellen He lived… Read more
-
If Matt had an native American Indian name, it might be “One Sock” Like “Soaring Eagle” or “Little Bird”, his would be One Sock Whenever the opportunity allows, he is wearing only one sock This morning, like many mornings, he wakes up, looking for coffee He is wearing one sock After we get home from… Read more
-
I didn’t make too big of a deal about it, I just got Matt dressed and ready for his day We got in the car, I took a different route to get there When we entered the property, he didn’t say anything much When we got out of the car, he said “why are we… Read more
-
I started the Uncle Lewy blog in June 2025, having zero experience doing anything like this Now, there are 137 posts communicating our journey I was feeling things were getting a bit bulky, there were some issues that needed fix’n, things could be more interesting Mary said, “why don’t you ask AI to help you”… Read more
-
Its amazing how important these have become lately An hour difference in the morning to me, even 2 or 3 hours, isn’t that big of a thing But for Matt, it seems now to make a huge difference Left to his own rhythms, he seems to like to wake up around 9:30 or 10ish, at… Read more
-
Ever changing………… We now have bed rails on both sides of the bed I have to get used to them too For some time now, he has been up and down for a portion of the night Typically its a bathroom destination, some times its a destination in the bedroom only he understands So far,… Read more
-
Matt’s environmental dependence activities in the evening seem to have calmed down a bit I wonder if me letting him clean the dinner dishes helps I say “clean”, what I really probably truly mean is letting him go through the “act” of cleaning, being helpful He will wash them in the sink, sort of He… Read more
-
Things seem to be in a relatively good place right now Our in home therapy’s will discharge fully today We have had the benefit of 8 weeks of help from physical and occupational therapists, nurses, social workers Soon we will begin to experiment with a new program Medicare launched in 2024 called GUIDE which sole… Read more
-
We have had a visitor he last few days Sheba has had a few slumber party nights Coco, our next door neighbors standard poodle, has been with us It was supposed to be a single over night stay…..but life happens A trip to the hospital happened for our neighbors So Coco and Sheba have been… Read more
-
No pun intended, but certainly one noticed, ever since I got back from Virginia, where the deep freeze happened, I feel like I have taken a chill pill It really came into focus this morning Matt was knocking about the kitchen, banging, clanging Typically I would spring up to supervise But I realized this morning… Read more
-
Matt’s birthday party was a success Success being measured in his positive anticipation, number of smiles from him, all the love that surrounded him Thank you to everyone for being there We came home and he crawled right in bed, stayed there most of Sunday too I admit, I was equally exhausted Having the crab… Read more
-
Arrived back from a week east Visited with Mom, got a break from Sully I had some great plans, all started well, till Snowmaggetten forecasts ruled the conversations….canceled almost everything Wednesday was fun, I got to see family briefly in Richmond, peeps from the office, join into the 757 Angels 10th year anniversary party All… Read more
-
So this morning after breakfast and meds Matt seemed to embark on an arts and craft project First, he gathered 3 clean cloth napkins, to which he found and added a dirty sock, a pair of underwear…most likely dirty He wandered around looking, looking….. Then he found 3 old bread bags in the kitchen garbage… Read more
-
The only time I ever heard about social workers before was on shows like CSI They were always the ones taking children from parents Mind you, usually the parents were in a big pickle, one thing or another, but still, my image of the profession was generally over worked cranky old ladies So when several… Read more
Living out loud with Lewy Body Dementia
a very personal journey……
Matt, CJ and Sheba……
If you are here to understand, catch up or just be with us for a moment,
you’re in the right place
Uncle Lewy 