Uncle Lewy

Living out loud with Lewy Body Dementia

Stamina

Matt’s stamina is definitely less now than ever

The last 2 days just venturing out of the house for a brief trip to the pool or to a low key, uncrowded, shaded winery to listen to music has brought him to his edge of tolerance

Its hard to keep this in context, this is a guy who hiked miles and miles every single day……..

Yesterday we went to Roche, nearby

They have a wonderful beer and wine garden, had a simple food truck for the day (oysters! my inner mermaid was very happy)

We found the garden pretty empty, there might have been 2 tables with folks out of maybe 30 tables at the time we arrived

We found a seating area under good shade, near where the breeze was blowing through, our favorite wine educator Rodd came to our table

It was nice, being away from home, a change in environment, enjoying just being together listening to some casual music in that beautiful place

Our neighbor texted us some pictures from where they were, in the Sonoma Square, and offered to buy us a drink if we met them at the Ledson Hotel

Matt said he was game and so as we wrapped up, we let her know we were on our way

The square was filled with Gay Pride related celebrations, there was a band playing, quite the change from our sleepy winery we were just at

The temp was mid 80’s, so not nearly as hot as it had been

But there were quite a few folks milling about, a band was playing nearby, there were tents in the square

We got a terrific parking spot, got out of the car, started walking towards the Ledson

About 10 steps later, I turn to see Matt holding on tightly to a large city planter

I move quickly to him, assess the situation, he said he was light headed

A very observant and nice couple are looking at me, “is everything ok”

Matt answers, “yes, everything is ok”; I look at them and quietly say “hang tight please”

I just didn’t know yet if I’d need help as we navigated the concrete sidewalk back to our car

I did get him to the curb right in front of our car, and said “thank you” to the kind couple

Once I got him in the car and sent a text to our neighbor that we had to abort our plan to meet them, we needed to go straight home

So this is all to say his stamina isn’t what it used to be by a long shot, its gotten shorter just recently

I had pumped him full of liquid in my battle with cousin dehydration……so this isn’t from dehydration, I don’t think, it shouldn’t be

Was it the beer he had at the garden? Was it the crowds he saw? Was it the level of noise, confusing surroundings?

Its such a guessing game some days

We made it back home, settled in for the evening, so everyone is safe and ok

So I guess that’s as good as it can get right now, we are safe, at home, have what we need for now

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