June 2026

I hope you had as much fun reading the SIPS BOR as I had creating it It genuinely brought amazing levity to my days as that was rolling out and allowed me many moments of rising above all that we deal with daily as we live with Uncle Lewy After the VA trip, Matt was… Read more

This shall be considered Amendment #7 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver shall retain the right to remember that Uncle Lewy is a guest in this household. An unwelcome guest, to be sure. But a guest nonetheless. It is hereby recognized that: Household Standing While it is… Read more

This shall be considered Amendment #6 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver shall retain the right to have dirty dishes located in any room, on any surface, and in any location where dirty dishes would not normally be expected to occur. Protected locations may include: The presence… Read more

This shall be considered Amendment #5 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The caregiver has the right to laugh at situations that, by all reasonable standards, are not funny The caregiver may laugh when the remote control is found in the freezer, when furniture is rearranged for the third… Read more

This shall be considered Amendment #4 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The spouse living with Lewy body dementia shall retain the right to erase a substantial portion of the day’s frustrations through the timely application of a sincere hug and an “I love you.” This amendment recognizes that:… Read more

This shall be considered Amendment #3 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: The household dog, Sheba, shall retain the inalienable right to patrol the perimeter of the yard and pursue squirrels along the fence line. This right shall remain protected provided that: Furthermore, it shall be recognized that: The… Read more

This shall be considered Amendment #2 to the Spousal Immunities and Protections for Sanity (SIPS) Bill of Rights: Amendment #2: The Right to a Good Night’s Sleep The caregiver has the right to expect that nighttime is, in fact, for sleeping. This amendment recognizes that: The caregiver shall be entitled to at least one uninterrupted… Read more

I am having a bit of fun this morning, giggling quietly in my quiet place After suffering a few inequities, including the complete disruption of a night of sleep Friday night And the unapproved, unauthorized use of MY coffee cup by you know who….. I felt the creation of a Bill of Rights was in… Read more

Last night was rough, Matt was up and down, more so than usual I moved to my alternative bed, in the sunroom, and it wasn’t long before he found me, joined me there I need to probably provide a bit of insight into what all that looks like, is now When Matt tries to get… Read more

In the midst of this journey, there are brief moments of delight The thing that can be hard is seeing them, savoring them Yesterday we went to one of our favorite places, VJB Winery in Kenwood It’s run by the Belemonte family, 3 generations are involved We often see the OG, what I call the… Read more

We are so so lucky, we have a family of angels, in heaven and here with us on earth Matt woke up Monday morning and after Nora got here, got in a bit of a tangle with her He was resisting his usual medicine routine, was refusing to let Nora put his patch on, Nora… Read more

Matt’s stamina is definitely less now than ever The last 2 days just venturing out of the house for a brief trip to the pool or to a low key, uncrowded, shaded winery to listen to music has brought him to his edge of tolerance Its hard to keep this in context, this is a… Read more

I have learned something new about myself recently: I really don’t like relearning a lesson I have already should have learned It wasn’t long ago we had that horrible trip to the hospital, full of stress, the unknown We learned how important hydration is, how dehydration is directly correlated to temporary additional cognitive decline, adding… Read more

My friend Janet read my blog about pictures from the past and sent a few I received them, studied them, all the while smiling I leaned into the feeling it gave me, a release from the walls that imprison me in our current reality December 2012, Janet and Chris brought their 3 sons to visit… Read more

Matt’s world doesn’t make sense to him anymore Its not the world he used to live in, things are so much more confusing, harder by far to navigate He used to be an active guy, hiking on Mt Tam 4, 6 miles a day, everyday That is no exaggeration Now, he can hardly complete a… Read more

I love it when family shares a fun picture of Matt I don’t know where this was, or when it was taken, but Eric said Lisa Admire shared it with him back in March It warms my heart to see these images, even though I wasn’t in Matt’s life when this happened This clearly is… Read more

While we live here on the west coast, another storm in brewing on the east coast As many of you know, mom and her friend Ron became companions during the pandemic They met at bridge, I think they were bridge partners first, and then things evolved into a situation where they spend most days and… Read more

They warned it would take time to recover from a trip that spanned 3 time zones Only now is the true affect appearing Sunday was a low key day, Matt slept a good portion of the day I took the opportunity to do a work out by the pool, then find my swim suit and… Read more

We’ve been back 3 days now from our east coast trip Matt has definitely been hallucinating more since we got back When he is awake there seems to constantly be string or something in his hand he needs to discard, but that’s pretty common place these days Over the last few days he has done… Read more

Yesterday we made it back to CA The trip was successful, all in all Matt weathered the time change, the location change, pretty well I expect the next few days he will want to just chill out, sleep a lot, hang out with Sheba I could see how the trip accumulated on him, the hardest… Read more