Uncle Lewy

Living out loud with Lewy Body Dementia

Nice Break

I had a nice break this past week

I got to hang out with my only brother who lives in Montana

Matt hasn’t connected with his phone successfully for months now…..

So calling him and checking in while I was gone verbally was a known failure exercise

So I got a true break

Of course, I felt guilty at times but there wasn’t much I could do about it

Matt’s sister Cornelia was with him, as was his usual care team of Nora and Michelle

We worked out each day, something important to both of us at our ages

It was really really good sibling time

I also handed off my childhood collection of Barbies, Skippers and Tina dolls to my grand nieces

close to 20 dolls

With tons of clothes, some made by the manufacturer, some made by very young CJ

I think the hand off to Avery and Katiri was successful

Grandma Jill insisting all dolls and clothes be washed prior to handover

And yeah, that was needed…..they dolls and clothes had been in storage for well over 30 years….traveled west, back east, back west…..in a box

Now they have a new home with some very active and super cute little girls

Being able to be with my bro, to spend quality time with him and his family, recharged me

At the same time, Cornelia got to spend time with her brother, Matt with his sister back here at home

The last few weeks, I think, added up to significant overwhelm for Matt

While Corny reflected that he had good moments of clarity while she was here, Friday, Nora experience perhaps a reflex from it all

They went out for a walk….Matt became somewhat non responsive to direction, somewhat walking comotose

She got him home safely, but it was definitely an off day for him, his stamina severely deminished

Combining it all, Matt’s last week or so was off his usual routine with a lot of great family moments….while that is awesome and we wouldn’t have changed a thing, it adds up

Now that I am back, the house is back to its usual rhythm, Matt is “fluctuating” a bit

Exhibiting behavior that is cra cra making

I will admit, it’s not unexpected, and having had a full break, easier to roll with

What specifically you ask? This am he got into the dog food, poured some liquid into the container we keep Shebas food in, potentially ruining a lot of dog food (which isn’t cheap)

I caught it, separated the wet from dry, and put what was wet in the dehydrator

There was no reason for him to do that…..he’s done that before, wasting a ton of food when it went moldy

He’s relocating furniture, pouring beer in things that doesn’t make sense, destroying any box he can get his hands on

He came to the living room with a bottle of Bactine wound wash, opened it up, began to pour it in my coffee

He doesn’t understand how inappropriate that it, I can’t help but react, to say “no”

Some things I just let go, some I intervene

In the midst of all this, I get some of the moments right, a few wrong, trying desperitely to give myself the grace of being human

At the end of all this, he is just trying to engage with his environment, make sense of it, control some aspect of it

But his tools to do so are compromised, wigged out by Uncle Lewy

It’s Sunday, he’s up, down between the beds, I watch him on the house cameras, making sure he isn’t getting into trouble

I am watching football, still in my PJs at noon, hoping my chances of beating Kayden in fantasy football improve as the day goes on

My team “Niners are Finer” is heavily loaded with 9ers, Kittle, McCaffery, Evans, Deebo Samuels…..

I need my boys to show up and out perform what ESPN thinks they will do

Come in guys, make my day! I need something here!


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2 responses to “Nice Break”

  1. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    I wondered where you were! So glad you could have some good time with your brother! xo

    Cathy Stierhoff clstierhoff@gmail.com clstierhoff@gmail.com 415-331-5578

    Liked by 1 person

  2. It was fun having you here.

    Liked by 1 person

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