Uncle Lewy

Living out loud with Lewy Body Dementia

Figuring it out

Thank you all for your comments, experience shares and support as I really begin to lean into the process of figuring out what’s next

Next week I have a consultant who works with families to identify the homes that fit the needs of the loved one needing to be placed

We met her in October 2024 when we came out to house hunt

Back then we toured a few places but it became very clear, there were no places that were a good fit based on where we were at that stage

So we chose the farmhouse and I don’t at all second guess that choice for a minute

Eloise will be coming to visit with us next Wednesday

It’s interesting, this process, what I am learning as I approach it this time

This time I know more, much more, about how this disease is affecting Matt

2 years ago, it was totally different

He could still hike, he wanted to be involved in decisions, he could handle outdoor events, large family gatherings

Now, he retreats when in large groups, does not have the stamina to hike or be in heat, sleeps alot

I do think he is managing some level of delusion almost all the time now, mostly things in his hands he needs to toss in the trash can

So while he stated his preference for the Redwoods, we might ultimately find it’s not the right place for him

I visited there, they manage the memory care a bit more in a standard way with group activities

I am not sure thats going be the right fit now

I did do some research….ok I asked Kathy (ChatGPT)….if there were facilities that specialized in LDB

Interestingly, there might be

The feedback was that one on one relationships, vs group activities, quieter places with not so much noise might be a better call for him

One place that came up on the list was on Sir Francis Drake right in the Kentfield area

When I saw that, my heart warmed because that is the general area Matt grew up and lived, his parents, aunts, uncles, grand parents lived

There is a beautiful essence about returning here, returning to the flora and faunta that is Kentfield

This is just the beginning, we are just scratching the surface, help is coming, much to think about but like most things, I just gotta take one step at a time

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2 responses to “Figuring it out”

  1. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    What a long way you have come, CJ. I am so proud of you. Xoxox Cathy

    Cathy Stierhoff clstierhoff@gmail.com clstierhoff@gmail.com 415-331-5578

    Liked by 1 person

  2. Michele McAteer Avatar
    Michele McAteer

    💞

    Like

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