Uncle Lewy

Living out loud with Lewy Body Dementia

Settling Back In

The last couple of weeks have been unusual, with my travel to VA and then a fabulous time here with friends

In the midst of that time, I started the TME series, spawned by quiet time on the airplane when I flew east to begin my trip

I found the creation of the TME posts, the simulation, projection, of Matt’s experience both very insightful and emotionally exhausting

There was a morning I had to myself in VA that I just got lost in the development of one of the posts

It’s a conversation I am having with AI to create and think, it’s a new interesting exercise

I can be there, in that zone, for hours…..so coming back to reality can be an adjustment

The exercise has made a difference in my mindset now that I am home

It seems to have retrained my brain muscle away from frustration as my first response to a more patient, loving response

As the story goes in Finding You, when Matt wanders in the night and comes to crawl in my bed, I am now helping him get in with me vs grumping him away

Last night is a perfect example, several times he came looking for me

He was a bit unsettled, so he didn’t stay each time long

He seemed to not be able to figure out how to get in bed once, then later he couldn’t find his way out of the room

So I got up, held his hand and walked with him to his bed, tucked him in

I do think the exercises thru the TME series has been transformative

I will continue to to add to that series, will develop a window into the series on the web page

These are intensive, thoughtful, reflective pieces, not to mention long for the reader to read….so new additions will pop up over time as inspiration, emotional bandwidth and time intersect

I am glad I am doing this, the blog, the various series’s that go deeper into a consistent framework

It’s helping me push through this tough time, helping me keep my sanity, helping me evolve as a human

Oh….and you get to stay updated too!

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