Uncle Lewy

Living out loud with Lewy Body Dementia

Through Matt’s Eyes (TME series to begin)

Ever since this journey began, I have wanted desparately to more deeply understand what Matt’s experience of the world is

There are folks to tell me “you can never understand what he is thinking”

To that I give them my third finger……seriously……that’s like saying “you will never understand the game of football so don’t watch, don’t ask questions, don’t try to understand, just walk away”

That’s not me, that’s not my game, tenacity still is my middle name (yes, its spelled with a “J”)

I was inspired to lean hard into this as I flew across the skys last week

It occurred to me I could engage with ChatGPT to help craft a simulation, a narrative fiction, based on fact, a real event, and simulate what Matt may have experienced

I have always been an experiential learner, OTJ has always been more real to me than theory

But all my current OTJ is really seeing these events, these moments, as I see them with my set of capabilities that are not compromised like his are

The only way that I can think of to create a simple “virtual reality” is to create a narrative, like what’s created when I read a great escape book

When I read, vacation reads in particular, I can escape for a minute, enter the world crafted by the author, meet the characters, feel what they feel

So I’m trying to do the same here……a tool kit if you like

My hope is that by building this took kit, this set of “novellettes”, real life experiences Matt and I have had, but turned so its simulating how he saw the moment, could be something I can return to over and over, I can increase my understanding of what its like being him a bit more, strengthen my understanding muscles

Understanding better, deeper, builds intuitive empathy, reactive reflexes based on deeper empathy…..or atleast that is my working hypothesis

I often feel I am missing this, intuitive empathy, that’s an area I can improve upon

Some of the “novelettes” will be longer than normal posts, it can’t be helped, its needed to create the “immersion”

I hope you’ll join me by carving out a few more minutes than normal to read, feel, experience

Each of these will be headed with the abbrevation “TME” which stands for “Through Matt’s Eyes”

So you can see these coming and allocate the time you feel you want to the read, to enable the experience

I’m truly interested in how you react to this: please comment either here or in whatever manner you find most expedient

I feel like I am trying to do something that hasn’t been done before and in that, I will likely get something wrong, not see something I should, take a turn in the wrong direction

So any input you have, any thought, will be honored, valued…..I only ask you consider sharing your thoughts with me as I dive into this exercise, craft and share these “novelettes”

I have 2 drafted, they will be posted soon…..I wanted to give you fair forewarning of what was coming

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4 responses to “Through Matt’s Eyes (TME series to begin)”

  1. […] For more about the purpose of this series, read Through Matt’s Eyes — TME Series to Begin. […]

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  2. […] For more about the purpose and approach behind these fictional narratives, read Introducing Through Matt’s Eyes. […]

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  3. […] For more about the purpose and approach behind these fictional narratives, read Introducing Through Matt’s Eyes. […]

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  4. […] story is part of the Through Matt’s Eyes series, a collection of fictional first-person narratives inspired by real experiences of living with Lewy […]

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