Uncle Lewy

Living out loud with Lewy Body Dementia

More

I look back at June after we got back from Virginia and see that truly as a new beginning

That was when I committed to really taking care of myself, figuring exactly what that meant for me

That was over 14 weeks ago now

How do I feel now? Amazing! I’ve lost some weight, strengthened and exercised my body on the regular, built more relationships outside of the home, made plans to visit my family in Montana and Virginia

More importantly, that has morphed where I am right now in thinking about Matt

I was getting annoyed on a regular basis by the behaviour this disease enabled in him

But now I am finding space to absorb that…..

So now I am thinking about what he needs “more” of:

  • Hugs
  • Kisses
  • Snuggles
  • Hearing “I love you” from me
  • Shoe tying
  • Nightime bed checks

It seems so simple, so obvious, but my experience in this journey is it can be really challenging to separate Matt from the disease

Its so hard to remember that, especially when my stress levels were high, when I was on constant alert, when my sleep was being disrupted too much, when there was never any “me” time

Now that we have a routine, we have more support, I have me time, I’m now in a better mental space to deliver more of these loving things

<–Back to Uncle Lewy

Leave a Reply