Uncle Lewy

Living out loud with Lewy Body Dementia

Ratio

As I lay in bed this morning, allowing thoughts to freely run around in my head, I couldn’t help but think about the ratio of Matt to Uncle Lewy

How much of my Matt am I seeing, living with, how much of the man is driven by Uncle Lewy now?

Based on this weekend, there seems to be a complete takeover, Uncle Lewy definitely has a higher proportion of the ratio

I wrote about Saturdays falls, 2 in a day

Sunday morning when Matt woke up, it was like he had been part of a murder scene (slight exaggeration)

His hair was matted with blood, blood stains were all over his t shirt and the jeans he chose to sleep in

The pillow case, pillow inside and sheets were all stained with blood that clearly came from his head wound from the fall Saturday evening

When I checked on him Saturday night, the head wound from the fall wasn’t bleeding, I had put a bleed stop powder on it because I know head wounds can bleed alot

Plus, the placement of it was akward…..there was no way to put a maxi pad like we did in Scotts Valley in May on his head without having to effectively give him a chin strap

I didn’t see that surviving the night…..so I opted for the bleed stop powder

But I guess in the middle of the night he must have scratched it or something because it definitely bleed all over the pillows and sheets

In the morning, he decided to move throughout the house, sleeping in all beds, painting smaller murder scenes

I spent the entire day yesterday doing laundry on the bedding cycle

He went upstairs, it’s warm up there mid afternoon….thud….fall 3 for the weekend

Now his elbow was bleeding

Head, elbow, toe……he was a mess

Blood drops were also randomly scattered through out the house on the floor where he dripped as he moved around

The worst was his head…..blood was matted in his hair

I applied warm wash clothes, cleaned as much as I could so no domestic violence charges would be brought….should anyone dare to visit this house of horror

But around the head bump I didn’t want to disturb the clotting, at Susan’s sage advise

Later Sunday, he continued to be a complete pill when he wasn’t laying in a bed

All day Sunday I was sick to my stomach, more convinced than ever before that his behavior is now “beyond my pay grade”

As I thought about the process of putting him in some sort of appropriate care home, it dawned on me how little of my Matt is there

He is still there, but in smaller and smaller ratio to that damned Uncle Lewy character

In the middle of the night Sunday he was wandering around

I got up, found him, asked him what he was doing

He whispered……I said “ I can’t hear you when you whisper”…..he kept whispering….he can speak up when he wants to

Uncle Lewy is literally trying to drive me insane

Uncle Lewy is seemingly in full control now…..

I think we’ve reached the time to see if we can find a place that will be better for him, full time care……..now it’s a matter of doing the work to determine where

We’ll see where this week leads us, the ground work was laid last week, now its about research, visits, all that stuff

<—Back to Uncle Lewy

One response to “Ratio”

  1. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    We’ve got you, CJ. You are on the right path. 💕

    Cathy Stierhoff clstierhoff@gmail.com clstierhoff@gmail.com 415-331-5578

    Liked by 1 person

Leave a comment