Uncle Lewy

Living out loud with Lewy Body Dementia

More Shadows

They warned it would take time to recover from a trip that spanned 3 time zones

Only now is the true affect appearing

Sunday was a low key day, Matt slept a good portion of the day

I took the opportunity to do a work out by the pool, then find my swim suit and jump on a raft and just floated freely on the pool for an hour or so in the summer sun

I noticed the affect of the trip when he came to see me as I was floating in the pool

We had talked about going to get pizza at our favorite winery, VJB, about 3 ish

So as I floated, he walked into the pool

I asked him to check the time on my cell phone to see if it was time to get out of the pool, get dressed to go

My cell phone was right there on the coffee table by the pool

He said ok, and just stood there

The phone was just a body twist to the right, a glance down, maybe a finger touch

But he just stood there, he literally had no idea how to accomplish that task

This was one simple example of several that occurred since we returned

Simple task, but the brain just isn’t relaying adequately to the body, the arms, legs, appendages, exactly what to do

Its hard, this, on so many levels

One, having the right response in the moment is hard

Two, being able to keep perspective that his ears, brain, body are not collaborating is hard

Three, seeing the man I love going through these changes is hard

Its just f***ing hard all around

We made it to our favorite pizza place, had a great late lunch, early dinner

I think they know, we go there enough, they clean up after us, see us, they must know

This place is very very family oriented in its genisus…..so if they don’t know, they get us, they understand

Maybe that is one of the many reasons we go there as often as we do

He wandered over to the gelato parlor, ordered a double scoop of dark chocolate

As we left, it was clear some of the dark chocolate was coming with us home, on his pants; maybe a snack for later?

We got home and rebandaged up his hand injured last Sunday between the boat and dock–its healing well, its just a huge injury to heal

So this evening is chill……just laying low, nothing more to do but hang

I just seriously hope that there won’t be an injury on a 3rd Sunday in a row, 2 Sunday injuries are enough for now, thank you

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2 responses to “More Shadows”

  1. I sorry you’re going through this. Matt does attempt to engage , but I can’t even fathom being lost in my own head. I think your doing great with his care and I hope you continue to make time for yourself to recover as well. Love ta, sis

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  2. Michele McAteer Avatar
    Michele McAteer

    Three timezones, wow, that is alot for anyone. Wipes me out. Love you and love that you find the strength to keep you and hubby on the go. Amazing Cj . Sorry it is so hard πŸ˜”. Hugs and smiles πŸ’žπŸŒΉπŸŒΏπŸ¦‹πŸ™πŸ»

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