Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Sea Ranch

I stood on the bluff and looked down the coast to where we exchanges vows

I could see the stairs we went down

Mind you, these were no sissy stairs

And also know, we had family members in their late 70’s, 80’s and maybe 90’s navigate them

The last 7 feet practically have to be repelled (I exaggerate, but it’s not untrue)

We posted sentries at the base of the stairs in case anyone came to enforce the rules

What rules? The rules you couldn’t have a wedding on the beach

We were crazy

I stood yesterday on the bluff, looking down the coast to that site

I had to pause

Things have certainly changed since then

Matt’s vows included being willing to travel anywhere I dreamed to go

Luckily we did a lot of that

Those days of wonton travel are behind us

We went out to dinner, just the 2 of us last night, to St Orrs

A Sea Ranch tradition for us, a hold back to old ways of doing things

The food didn’t disappoint, as always

The joy of dining out was not the same

Everything about it was fraught with one thing or another for me to manage, for him to possibly resist

I sat across from him knowing this was the last time we’d be here just as a couple

So much has changed in just 16 years

Happy we could, we did

Sad we can’t, we won’t anymore

This is an anniversary like none before

One response to “Sea Ranch”

  1. wondrous268336d70c Avatar
    wondrous268336d70c

    Our hearts go out to you, beloved.

    Liked by 1 person

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