Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Lewy Lean

As we journey, we learn from others. Those things we think important we will share here in hopes it may clarify, in hopes it may help you or a loved one you care about.

Lewy Lean (or Pisa Syndrome)

In Lewy body dementia (LBD), patients may lean to one side due to a condition called “Lewy Lean” or Pisa syndrome. This postural abnormality involves leaning from the waist, either sideways or forward, and can affect both walking and standing. 

Here’s a more detailed explanation:

  • Lewy Lean/Pisa Syndrome:This is a common feature of LBD, characterized by a tendency to lean to one side. It’s also seen in some cases of Parkinson’s disease. 
  • Impact on Movement:The Lewy Lean can lead to difficulties with balance, increased falls, and problems with activities like walking through doorways. 
  • Underlying Cause:LBD affects the brain’s ability to regulate movement and posture, leading to these postural changes. 

What to do if this happens? Right now we are sticking with getting to safety first, getting home to familiar surroundings, rest, fuel. Inquiries are in to see what triggers to be aware of. Again, just guessing, overstimulation, too much packed in a day, may be a top suspect here.