Uncle Lewy

Living out loud with Lewy Body Dementia

DND

Nora arrived Monday morning…..I briefed her on the weekend

Handed to her the challenge of cleaning him up, including the big clump of dried blood still on his head

”He is yours for the next 8 hours”

I put my phone on Do Not Disturb, blocked the world out

I went up to my secret tree house in the water tower, did a full hour of yin yoga

I could feel the attitude adjustment begin to happen, my hardened places softening

I don’t exactly know how to describe how I was feeling, but it wasn’t good

The weekend had been really really hard to endure

So I fashioned as complete an escape as I could, sequestered myself in my exercise tree house, alone, phone on DND

I was pushing the world away, claiming space for me, only allowing what and a few who’s I wanted to connect with into my moment

I suppose it gave me a sense of control, something I really felt I didn’t have much of all weekend

I left it on DND all day, my way of protesting I guess

I have reached burnout

I have seen my limit (which is saying alot)

I don’t have a map back yet

I feel like I am standing still, letting the world whosh by me, brain dead

<—Back to Uncle Lewy

2 responses to “DND”

  1. Good for you. Life, especially dealing with something as life charging as Uncle Lewy, can be overwhelming at times and we all need a break and a time of solitude to reset and help clear our minds and spirit. We keep praying for you and Matt and asking God to give you clarity on what you should do.

    Love ya, sis

    Liked by 1 person

  2. wondrous268336d70c Avatar
    wondrous268336d70c

    It’s time.

    Liked by 1 person

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