Uncle Lewy

Living out loud with Lewy Body Dementia

April 2026

  • Burnout Buster

    Mondays Nora comes to take care of Matt She helps him take a semi weekly shower, shave, takes care of a bunch of things that keeps the house in good order, Matt in good shape I had a plan to go check on the Sausalito property outdoor space refresh that is in progress while Nora… Read more

  • The Kitchen

    As I sat and listened to Matt bang around the kitchen, trying to clean up after breakfast, I realized it was probably time to celebrate a success Ken our brother in law, made this stove top cover for us last year We brought it home on Christmas Day and have been using it ever sense… Read more

  • hyDRATION

    Seems this is a thing with a lot of power, life giving and life taking power Its not like I didn’t know hydration was important, for a decade I have been carrying around a water bottle that syncs to my cell phone To this day people ask “why is your water bottle glowing?”; it glows… Read more

  • Calm Between

    The last week or so have been pretty low key, nothing much going on Matt is sleeping late, the weather is discouraging us from attempting to get out and hike or really do much He continues to do strange things that indicate he is trying to control his environment, move this to there, so on… Read more

  • A Little Normal

    After all that has happened the last few weeks, we needed a little normal yesterday We had nothing on the schedule, totally blank Matt had a decent night sleep, so did I, after the whole patch thing He started his day back in his normal way, getting up once or twice in the morning, pretending… Read more

  • The Patch

    Much is made about moving from a pill version of a prescription to a patch Our neurologist recommended it on our last visit about a month ago It took a few weeks, but the RX arrived, so Sunday afternoon, after we had a really nice lunch in Petaluma with Terri and Rick at Lombardi’s (can… Read more

  • Sleepiness

    Matt sleeps a lot, I have mentioned it a few times As the weeks go by, he sleeps more and more So I looked this up on the web, looked up “should I be concerned my loved one with Lewy Body Dementia is sleeping alot” Here is what I learned: Excessive sleep is a common… Read more

  • (subtitle: drink more water) There is much debate about Matt’s beer joy He likes IPA, always has as far as I have known him Even now, when we go to the grocery store, he initially isn’t sure which section holds his friends, but he eventually gets there At home he enjoys the ritual of a… Read more

  • Mornings

    Mornings are hard around here, hard in the sense you never know what’s going to happen, how Matt will feel, when he will wake up, how grumpy, how “with it” will he be Its 11:24am, I made his breakfast a few hours ago, but I can’t coax him into eating it I did, after 4… Read more

  • The Pool

    My long time friend Lyn called yesterday She caught me out by the pool I told her about my pool episode, my pool battle, which had us both in stitches laughing, she said I had to blog about it It was day 3 of subbing for the pool guy, which hasn’t shown up for a… Read more

  • Rollercoaster

    If this is anything, its a rollercoaster ride Sunday, Matt was dancing with family having a great time Tuesday, I called 911 Having trained with the fire department when I was a beach lifeguard, I have a tremendous amount of respect for those called to 911 response duty So I don’t call 911 without considerable… Read more