Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Chill pill

No pun intended, but certainly one noticed, ever since I got back from Virginia, where the deep freeze happened, I feel like I have taken a chill pill

It really came into focus this morning

Matt was knocking about the kitchen, banging, clanging

Typically I would spring up to supervise

But I realized this morning my “inner sheriff” seemed to have taken a chill pill

If he breaks something, oh well

If he puts the dishes away dirty, oh well

I hear the dishwasher is on….I guess the “clean/dirty” sign didn’t register

Those dishes are going to be really clean! This is their second cycle

I think my sheriff will continue to engage when feeding the dog is involved….thats a bit more at stake

It feels good to not be so high strung

We have changed his med timing, Corny did it really when she was with him while I was east

I have just tried hard to keep it up

I think it is modifying the annoying environmental behaviors, calming him down

This journey so takes a village, it really does

My long time friend Debbie moved into a short term rental nearby, the visits have been great, a nice distraction from our usual routine

And the weather has been so very nice, we have been able to hike in 60-70 degree weather and hang by the pool

I will continue to enjoy what seems to be a reprieve in both my high strung-ness and the cold

My friend Barbara, whose husband also has LBD, has been in the hospital with her husband for the last few days

No doubt those days will come in some form for us and I will look back on today and the last few days wishing they continued

We are reminded of how fragile life is as we dog sit our neighbors dog

They had an awesome event they were going to Tuesday in advance of the Superbowl

All the legacy stars of the 49ers of yore were there, she’d met and worked with many of them

Middle of the night things changed and they were emergency room bound

A clear reminder how fragile life is, how precious the good days are

I am greatful for my chill pill, I hope my bottle of’em doesn’t run out!

One response to “Chill pill”

  1. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    I love you, CJ. That’s it. Nothing more. I just send you my love. Xoxoxoxo Cathy

    Cathy Stierhoff clstierhoff@gmail.com clstierhoff@gmail.com 415-331-5578

    Liked by 1 person

Leave a reply to mentalitysensationallyfc14c86ab9 Cancel reply