Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

My Birthday

I thought it was going to be a bust

My hopes were fairly simple, I just wanted to sail on my Hobie, we’d play off of China Camp Village Beach

Picnic, hang, sail, kayak, hang, be

Whoever could come, drop by, casual

But a couple days before, I caught a nasty cold

Energy levels plummeted, I called the whole thing off


I didn’t want anyone to go out of their way and be inconvenienced by last minute changes, fluxuations, miscommunications

Weather report called for sun, 84 degrees

Arghhhh……maybe I can rally. Won’t know till mid day on my birthday, that was my secret plan, my hope

Birthday texts and calls flowed in all morning, I had a nice chat with Mom as I sat outside in the beautiful weather by the pool

A college friend whose birthday is the day after mine texted, we had just seen them in March

So much had happened since then, she said we’d been on her and her hubby’s mind so much

I couldn’t remember if I shared a link to this blog with her, asked if she’d be interested

Not always easy to read, I caveated

Yes! She read, wept, laughed with us as she dove into this journal of our journey

4 more hands are now linked to ours now as we walk this path, move along this journey

What a beautiful village we have around us, I took pause to appreciate

A bit later, Courtney arrived back at home, returning from an over night adventure

”I found something outside for you” she says

I thought it was a bouquet of flowers, an Amazon delivery

It was neither

There, standing just inside our front door, was my bestie Mary, with a bow on her forehead!

What?!

Is this for real? Is this my imagination?

OMG! You are really here, now, here!

I cried

This G friggin SD girl cried, happy tears

Shocked, amazed

They, together, no doubt other co-conspirators, pulled off such a great surprise, I just could not believe it

The rest of the day was just pure magic

No Hobie, but we all went to a beautiful beach

OMG, perfect weather

The day ended with a super easy dinner with my bestie Lori and her hubby Mark outside by the pool

I thought my birthday was going to be a bust

It turned out epic!

Uncle Lewy had shown up in the morning

But he tucked tail later, behaved, the force of the love surrounding us proved more powerful.

2 responses to “My Birthday”

  1. wondrous268336d70c Avatar
    wondrous268336d70c

    Beautiful. I’m so happy you had a lovely day. 🙂

    Liked by 1 person

  2. cheers and hugs and birthday love and mermaid wishes and sunshine and epic surprises and princess cake well deserved sweet friend!

    Liked by 1 person

Leave a reply to Lori Cancel reply