Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Most frequent word

“What?” has been, for quite some time, the most frequently used word in our home

Mostly my fault, my heredity hearing that went to shit in my late 40’s

Matt mumbles too, so we are co-conspirators in this trouble

My hearing aides are currently going on the fritz…..time to replace them, that isn’t helping at the present

But there is a new phrase that is vieing for the most frequently around here

”What are you doing?”

I hear some kind of noise, get up to investigate, see Matt doing something that doesn’t quite make sense in the context of the time of day……..

This morning, wearing his plaid shorts on top of his Levi’s…..wearing his Annapolis Lucky shirt for the 5th day in a row……he is taking the compost out of the compost pail

”What are you doing?”

I am taking the compost out

He sets the recycle bag on the counter…..which leaks compost juice all over the place

I grab a bowl, put the full compost bag in the bowl, use a rag to wipe up the juice

15 minutes later, the compost still sits in the bowl on the counter

But the laundry basket has now been moved to the chair by the front door

I didn’t get a “what are you doing?” said in time for that I guess

He reported he fell out of bed

Someone pushed him……

I may need to remove the box springs soon to lower the height

Does it seem like this post is going off in random ways, all over the place?

Then you get the picture of life here…..this is our current normal

I could go on and on……there is plenty of material

Mary says I gotta find the humor in the moments

I don’t disagree with her, I wish I had her amazing sense of humor

The image of plaid over Levi may need to trump this mornings images, removing the compost leak from memory…..my early morning fashion show

So what will the next outfit on the catwalk be?

One response to “Most frequent word”

  1. clearlya77c738296 Avatar
    clearlya77c738296

    Underwear on the outside? Sounds like a job for Super Matt.

    Liked by 1 person

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