Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Can’t Fix That

Refilled my coffee cup this morning

It was sweet, I drink my coffee black as night

Matt put sugar in the coffee kraft, not his cup

He doesn’t realize he did that, can’t “own” it

What you don’t understand, I guess, you can’t own

While he did put sugar in the coffee kraft (Sheba certainly didn’t, she’s not that tall and has no opposible thumb, she being the only other being here) he just doesn’t get that he did

Translation: I can’t fix that

I communicated what he did to him, it only made him feel bad

Teaching moments are rare these days, I wonder if they even exist

Is it worth causing him to feel bad? To see his disease in technicolor?

Such a hard question to answer

Plus, the answer might be different depending on when asked

So, my work is to get my head around proper operating procedures around here when “fixing” the problem is not an option

If I am anything, I am a problem solver, operative word “solver”

Great joy comes from exercising my “figureroutter”

That tool, when it comes to Matt behavior, has to be kept in the tool box

I get to use it on other things, but certainly not on him

Roll with the flow, sweep up behind, fix while he’s not looking

Just accepting there is a lane where no fixing is allowed is my challenge today

So what is the fix this morning? Make another pot of coffee, clearly, and “forgetaboutit”

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