Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

fervor

I saw his smile yesterday

Full force, reflecting happy

Eyes bright

Such a salve for my soul

We were dancing towards the end of Elliot’s band set

Everyone who was still there got up and danced by the pool

Matt grabbed both of my hands and wanted to dance face to face

We have always sort of Shagged, a beach version of swing…..called the “swing dance of the south”

Nothing fancy, but holding hands, sometimes turning each other, the arm slide…..

I could tell how Uncle Lewy had taken some, most, of his old dance moves

But he was bouncing, swinging, trying

Smiling

A kind lady who we didn’t know said to him “you dance with fervor”

Matt had the presence of mind to ask “what does that mean?”

With ernest, passion

He smiled brightly, that picture is burned in my memory as if I took a photo

It soooo warmed my heart

He loves being with his family, I know he does

Each one in their own unique way, with their unique gifts, give him something special

In its simplest form, it’s a momentary break from me!

But in there is for sure a sense of normal, shared history, so much kindness

Someone recently said I was putting my life on hold to care for Matt

I ponder that, not convinced I believe that to be true

We are living our life, joined as one in free will on the beach in Sea Ranch October 11, 2019

This is our life

So we live it the very best we can

I have no regrets the hard work and sacrifices made

Yes, there have and will be hard moments, but that is very much part of what living our life to the fullest requires us to punch through

So I, we, strive for more Matt smiles, more dancing, more fervor!

2 responses to “fervor”

  1. Beautifully said Cj. Your life is different because of darn Uncle Lewey, but you are still living and loving life together. 💞 A strong foundation and much happiness. A loving wife, a husband still adoring you. I love that image of you two dancing.💃 😍 Thanks for sharing. Love

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  2. Lisa R. Magnuson Avatar
    Lisa R. Magnuson

    It was such a fun afternoon and dinner. will be fun to put on our boogie shoes for the bday party!!!🎉

    Liked by 1 person

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