Things change here on a dime, quickly

One day I am reporting Matt is doing ok

The next, today, I am reporting he had a very bad day yesterday

Matt loves to hike, so we continue to do that as often as we can

Yesterday, we did one of our local favorites, Bartholomew

It’s challenging with 500 feet of elevation, bouldering sections

He enjoys it, has done the hike successfully dozens of times since we moved here

Not sure what the difference was yesterday

He lost his ability to independently manage his balance and legs about halfway through

Luckily, we were at the point that the remaining hike was flat or downhill

Tracy, Paul and Annabel were with us

It took extra time to complete the hike, get back to the car, we eventually made it down, true team effort

As we drove home, he was very pale, skin clammy, expression distant

Once home, I cleaned him up, put him in bed

He was very shaken, his words difficult to push put

After some time, his color returned

He stayed in bed the rest of the day

I think something similar to what happened on Angel Island, Lewy Lean, happened yesterday

His motor coordination, legs, was impacted by Uncle Lewy

This is super scary for Matt, he doesn’t have control

Because we had quite a ways to go to get to the car, to safety, there was no easy call for help

The act of walking down, even supported by Paul or I, or both, was overwhelming exertion for him

It overtaxed his system, clearly

So we really never know

Things can be going really good

Then, like yesterday, change on a dime

I am so grateful for the kindness, help, understanding that Tracy, Paul and Annabel provided in the midst of all this

I am ever so grateful Corny was staying with us this weekend so that I didn’t have to choose between making sure Matt was being well cared for and being a part of Mary’s celebration events

I don’t know, can’t imagine, going through this alone, without the village we have

All the efforts to help us in small ways, add up to huge help

I sit here this morning reflecting in the quiet, grateful, for you all

Waiting to see how he will be, what he will want for breakfast, starting a new, hopefully better day today