Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Delusions

Individuals may misinterpret what they are experiencing and form false beliefs about their surroundings and the people in them.

This is the hard part, this is the piece that hurts the most, is a stab to the heart

Anyone who loves another enough to stand by their loved one thru thick and thin, be it this disease or any other type of thing, no doubt will find this so utterly upsetting there are no words to describe

Standing by your person is a true demonstration of loving character

These delusions can be the ultimate antitheses, a direct assault on that character

I know it’s important to me that I am of good character, that my decisions I make demonstrate that

The importance of that has driven me to take the more difficult path in life, work, relationships

So to be attacked at that very point of strength, takes the wind right out of me

Getting clinical, trying to understand what the brain is doing……I hope, pray, I can hold onto that when the next delusion that attacks my character comes

2 responses to “Delusions”

  1. From my experience, this is one of the hardest parts.

    When someone you love lashes out, the pain cuts deeper than words can express.

    Even when you try to understand it logically or clinically—even when you do understand—it doesn’t make the gut punch hurt any less.

    There were times I literally locked myself in a closet and screamed, cried, acted like a total maniac… anything to let it out when I couldn’t go exercise.

    You have to do whatever it takes to survive those moments.

    And try to remember: the punches feel real, but they’re not a reflection of who you are. They’re not the truth.

    Hold on. You’ll make it through.

    Liked by 1 person

  2. wondrous268336d70c Avatar
    wondrous268336d70c

    Literally walking in the steps of Jesus. Accused and afflicted for no reason. I love you, dear sister.

    Like

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