Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

courage

I run up against courage limitations in the strangest places

There are many resources out there for “adult day care” or “respite” offerings

Most are at senior type centers

News flash: both Matt and I don’t see ourselves as seniors….but we do appreciate the Tuesday discount at the grocery and hardware store (a dose of denial can be healthy, right?)

Locally, we have one called “The Vintage House”

The genisus of this was inspiration of local community members who saw an opportunity to help neighbors age gracefully, live more abundantly

We should check these things out

I am fearful Matt won’t embrace this, so that is where my courage is failing me today

He is finally getting into boxing. That is becoming a community for him, an outlet

He needs more ways, alternatives to being only with Sheba and I

He sleeps more now, naps more often

That is expected with this desease

Could he up his quality of life a notch by adding another set of activities?

It sure would be nice for me for him to have recurring activity that breaks up some of the daily isolation

I need courage to attempt to try but expecting a fail

It takes energy, courage

I reached out the other day via their website….got a response to come by during a weekday and ask for Denise…..

Maybe we can take another step forward today to learn more, no commitment, no fail

Then maybe more courage will show up

One response to “courage”

  1. wondrous268336d70c Avatar
    wondrous268336d70c

    Leap and the net will appear. I pray you will have the courage as you need it. Love you so much.

    Like

Leave a reply to wondrous268336d70c Cancel reply