Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Turn, turn, turn

I love getting into morning conversations with myself

Matt’s continuing to relax in bed

Sheba is in and out of the house

I sit in my little corner, my nest, doing my thing

Journaling, reading, digesting, conversing with myself

Using my whole brain, not just the front left lobe which wants to take over and multi-task

This morning I am pondering a chapter in Pauline Boss’ book

There are several concepts I am chewing on:

Resiliency: learning to accept unanswered questions and tempering desire for closure

The natural evolution of independence to interdependence—the healthiness of that

As I was pondering this, reading and rereading the paragraphs, the song from The Byrds “Turn, Turn, Turn” came into my consciousness

The lyrics are limited, so I wanted to add some new ones:

A time for pause, a time to go

A time to be free, a time to be joined

The lyrics repeat “ A time to every purpose under heaven”

There was a time Matt and I were fully functional, independent but joined by choice

The time now is one of interdependence

Accepting that, embracing that, this chapter speaks to the freedom that comes from that acceptance

We went to the Petaluma Music Fest recently

It’s a long day event, we only lasted about 3 hours

Less than perfect outcome, we missed several bands I had wanted to see

Embracing what we were able to see, accepting that as good enough, frees me from negative emotions like disappointment, frustration

Focus on the dancing we did by the picnic tables, enjoying the beautiful day, the bands we did see

That’s getting to be good enough for me

I am beginning to embrace the concept of accepting good enough is a path to sustaining resiliency for this journey

3 responses to “Turn, turn, turn”

  1. Great lessons for all humans – thanks for the call of the importance of accepting “good enough”!

    Liked by 1 person

  2. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    Hi CJ!

    I tried to login/create an account to comment, but I had no luck. I’m sure it is operator error. In any case, I wanted to make the following comment:

    I love today’s post! Along the same lines I have been learning to accept the difficult times along with the easy, the ugly along with the beautiful, the grief along with the joy. I’m turning around to believe that I can have both/and instead of either/or. Does that make sense? All that to say, that I love you and support you.

    xo Cathy

    Cathy Stierhoff clstierhoff@gmail.com clstierhoff@gmail.com 415-331-5578

    Liked by 1 person

  3. Cathy, there is much conversation about “both/and” vs “either/or” in early chapters of this book I am studying. I think that is on point to what you post. The concept that 2 opposing things can be true at the same time. Very hard for us left brainers!!!

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