Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

half

How do you love parts and pieces of a person?

Or how do you love a whole person, but not certain parts and pieces?

I want to take an eraser and rub out Uncle Lewy

Scrub and scrub

Make Uncle Lewy go away

Make loving Matt easier

Make him loving me easier.

One response to “half”

  1. You focus on the parts you love! And the memories you created together!

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