Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

good place

At the moment, I am in a good place

Same usual things are present: chair relocated to a strange location, unsure what I will find when I open a cabinet

But, in this moment, I have let the frustrations I might have with those annoyances go

Its my morning quiet time right now

Matt sleeps in

This week has been filled with family and friends

A good mix

My cousins Brad & Judy are with us from Virginia

I was 10 years old when he was born

So he was the first of many baby cousins who joined our family back then

Being back in Virginia the last 7 years gave us a great chance to rebuild our relationships as adults

What a powerful gift family is

Investing time in relationships is so meaningful to me

This is their first time in California, so we have been packing it in

I think its been overwhelming for Matt

Barb was so intuitive, she saw that coming

She came up yesterday to Marin to take Matt on a hike

I can’t thank her enough for making the trek up, carving out time to be with her brother

Its morning, its quiet, the dog is acting out a nap dream……yeah, I am in a good place……in this moment

One response to “good place”

  1. Cherish those moments!

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