Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

In the midst

I am so angry

I can’t explain why

I can’t control this situation

His agitation

Getting locked out of the house, constantly, by him

I don’t know how long I can take this

He wanders today, constantly

There is no real, meaningful communication

He just mumbles

I put my ear right up to his mouth so I can hear him

He just talks softer

Why can’t you just talk a bit louder?

He says he can’t

Is that true, or can he but won’t?

This is enough to drive me completely insane, quickly.

2 responses to “In the midst”

  1. Sending hugs and prayers… your pain is real and I am so sorry!

    Liked by 1 person

  2. wondrous268336d70c Avatar
    wondrous268336d70c

    Tell God how angry you are. He can take it. He is near to the brokenhearted.

    Liked by 1 person

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