Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

You

The world goes round and round

Some of us are suffering

Some of us are healthy

No one needs to be brought down by our suffering, with our story

It’s mostly sadness and loss, mixed with a few rays of sunshine

Sunshine in the form of you

Small joys come now and again, I try to find one as often as I can

You bring sunshine every time you share a piece of you with him, us, me

Our story may be too much for some to read daily, to keep abreast of

That’s ok, understandable

Walking alongside is us doesn’t mean you are carrying our burden

You provide sunshine, a distraction, a small lift that may keep him, me, us out of a dark place

That’s a priceless gift

This isn’t your burden

Unfortunately it is ours

Little things you do add up, they are so valuable

We thank you, I thank you

One response to “You”

  1. wondrous268336d70c Avatar
    wondrous268336d70c

    It is your burden, but we are here to bear one another’s burden, beloved. Let us help you carry it.

    Liked by 1 person

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