Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Family

They care

They do

Some are self starters

Some need stimulation, permission

They do care

They touch the deepest part of my heart

They hold my heart in their hands, cradling the most delicate part

My eyes fill with water

They care

They are beautiful

Each in a different way

A garden of vegtables

growing in their own timetable

nurishing in different ways

together complete

This is hard

I can not imagine doing this alone

I can not imagine living with this in the quiet

we live this out loud so he can be loved

There is no shame

Are we asking too much of them?

His sister feels no burden as she drives 3 hours both ways

His cousin gets emotional thinking of what he is going thru

My cousin is loving us through this, doing so much

Some are not aware, absorbed in other things

That is ok

We all have a role

I am grateful for family

2 responses to “Family”

  1. We are here. We want to help. We want to do what we can. Please, never hesitate to ask. I feel helpless, not knowing what to do or say. We love you both so much. I’m weeping. I’m praying.

    Liked by 1 person

    1. Knowing you are there, joining our journey and sharing looking after Sylvia is helping. Thank you love!❤️❤️

      Like

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