Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey……

Matt, CJ and Sheba……

If you are here to understand, catch up or just be with us for a moment,

you’re in the right place


Recent moments as this journey continues…..

  • True love

    True love is a complex emotion characterized by deep affection, intimacy, and commitment, often involving selfless giving and a desire for well-being of the other person. It encompasses both strong emotional attraction and willingness to nurture, support, and respect the other person, even through challenges. Its good to be reminded of definitions sometimes Go back… Read more

  • The harder path

    It might be easier sometimes to weald a power of attorney so I can make all the money decisions myself Things like selling the house, paying Matt’s bills, managing his money Its hard for him to do those things now We have had to make some big decisions on selling the house in Virginia I… Read more

  • What’s Best?

    I struggle with deciding what is best for Matt sometimes Some of this is because he isn’t exactly the same everyday I am learning that, daily Some is the balance of maintaining as much normalacy as possible Enabling him to do the things that he enjoys For him, that is hiking and other outdoor activities… Read more

  • Gifts

    Yesterday we met up with friends to paddle board and kayak on the Russian River I have driven by the Russian River so often on the way to Sea Ranch, but never have put in Lois and Mark suggested joining them at a particular beach, that was a gift they gave to us EB was… Read more

  • in the morning

    I was so angry last night Palpably angry I couldn’t figure out why I journaled and journaled Specifying exactly what odd things Matt was doing didn’t seem to scratch the itch In the stillness of morning, maybe I have come to an understanding I may be mad for more than one reason My mad may… Read more

  • In the midst

    I am so angry I can’t explain why I can’t control this situation His agitation Getting locked out of the house, constantly, by him I don’t know how long I can take this He wanders today, constantly There is no real, meaningful communication He just mumbles I put my ear right up to his mouth… Read more

  • Tight rope

    Sometimes it feels like I am walking on a tight rope Sometimes I can maintain balance, keep moving forward, slowly, step by step Other times I feel like I am being pushed to my absolute limits and I am going to fall, never to recover Being at risk of falling is enough to drive me… Read more

  • Here and gone

    With Alzheimer’s, the person is often described as being both “here and gone” That makes sense to me, thinking about my experience with Walter Walter definitely went into his own world But then he’d pop out and have a moment of clarity This thing with Matt is different, in a profound way I am reading… Read more

  • identity

    I’ve always held certain concepts of myself in my mind Things like that. Things built on accomplishments. While I readily and willingly accepted the role of being Matt’s wife That didn’t define me Being a wife, his wife, was never about accomplishing anything It was a joining of journeys, a joining of lives 2 relatively… Read more

  • The Gate

    We have a gate now where we live It completes the fenced in yard that keeps Sheba safe Sheba can go out, do her businsess, manage the squirrels, paw around like a free mut Each time we come and go by car, we have to open the gate, and close it behind us Matt does… Read more

  • all of me

    John Legend sings: ’Cause all of me Loves all of you All your curves and all your edges All your perfect imperfections Give your all to me I’ll give my all to you You are my end and my beginning Even when I lose, I am winning ’Cause I give you all of me And… Read more

  • treading water

    I learned to tread water young In college, I learned to tread water “egg beater” style, it was a game changer Plus, for reasons I won’t elaborate on, I have natural buoyancy So for me, treading water doesn’t bring up fear or anything negative It’s more of a holding the line kind of thing Staying… Read more

  • prayers

    We need to sell the Virginia house This is the season, holding on to it through the winter adds a complexity to life we just don’t need or want The house has been so good for us Protected us during Covid with its generous yard Cradled Granny at night during her many visits Allowed us… Read more

  • sista

    Mary and I try to talk every weekend Since 2021, its 2025 now It doesn’t always work out We are in different time zones now We used to be in the same time zone Then she moved to England So we were 5 hours apart I moved to California So we are now 8 hours… Read more

  • his eyes

    His eyes are glassy now A soft cashew color He looks at me intently, over the dinner table Slightly hooded The hooded look used to be the prelude, warning sign of a bad coming Something I did that upset him Something I didn’t do that upset him An inbound Uncle Lewy gut punch He looks… Read more

  • VR helmet

    I so wish I could put on a virtual reality helmet to experience what Matt feels, sees, thinks, but mostly feels If I understood his reality, it might help me manage my emotions better This is very much a soft tissue injury, no X-ray can see it Nothing yet really explains it, fully There is… Read more

  • boiling frog

    There is this saying, story, about a frog that gets in a pot of cool water The water heats up slowly The frog realizes it’s boiling, she is boiling….it happened so slowly she didn’t realize it I changed the he to a she….I can relate Days come and go, things happen We don’t live a… Read more

  • Paddling

    I want to go paddle with a local outrigger group. They launch 5:30 pm a couple weekdays. I paddled in VA, it made me feel alive! I so want to do it here. I found a group. But I can’t leave him at night, alone. Its the worst time for him to be alone. I… Read more

  • You

    The world goes round and round Some of us are suffering Some of us are healthy No one needs to be brought down by our suffering, with our story It’s mostly sadness and loss, mixed with a few rays of sunshine Sunshine in the form of you Small joys come now and again, I try… Read more

  • breakfast

    Breakfast is our time to talk Family business Decisions that need making Schedule for the day, week Anything of importance we talk about over breakfast This seems to be his clearest time The morning after, I apologized to Matt for getting mad at him Hope had risen in my heart we could go back to… Read more