Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

coaching

We count as a true blessing being introduced to Cheryl Hutto. Cheryl herself is a caregiver for her partner. She is also a certified coach. When this was all coming to a head, we thought we might be getting answers to to odd behaviors, she was introduced to me by Dr. Sheetal Ajmani, Founder of the Radiant Living Institute.

https://www.radiantlivinginstitute.com/

Sheetal herself is amazing, with an equally amazing story. Then when the diagnosis dropped, our heads were spinning….I started working with Cheryl. Having someone on my side, who gets it, who lives it, who helped me get my mind around this new reality, was immensely valuable.

One of my big issues was living mentally so far in the future. I needed to be more present. Get thru now, let later happen later. I can not tell you how hard that is and how much work it took.

https://cherylhutto.com