Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Updates

  • Update 11.02.25

    I think I am going to try to do a symptom/ health update about Matt at least once a month now Many folks ask, are genuinely interested, we greatly appreciate that We go to see the neurologist later this month, a return visit, we think highly of him Matt has gotten skin check, teeth checked, Read more