Understanding Lewy

Its amazing how important these have become lately An hour difference in the morning to me, even 2 or 3 hours, isn’t that big of a thing But for Matt, it seems now to make a huge difference Left to his own rhythms, he seems to like to wake up around 9:30 or 10ish, at… Read more

Ever changing………… We now have bed rails on both sides of the bed I have to get used to them too For some time now, he has been up and down for a portion of the night Typically its a bathroom destination, some times its a destination in the bedroom only he understands So far,… Read more

Matt’s environmental dependence activities in the evening seem to have calmed down a bit I wonder if me letting him clean the dinner dishes helps I say “clean”, what I really probably truly mean is letting him go through the “act” of cleaning, being helpful He will wash them in the sink, sort of He… Read more

Its wierd Gravity doesn’t work that way He leans to the right Right is downhill He slows down But he is okay for now Its just wierd We keep walking The path we are on is uneven I am growing concerned He says he is fine But he is leaning severely from the waist, to… Read more