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My long time friend Lyn called yesterday She caught me out by the pool I told her about my pool episode, my pool battle, which had us both in stitches laughing, she said I had to blog about it It was day 3 of subbing for the pool guy, which hasn’t shown up for a… Read more

If this is anything, its a rollercoaster ride Sunday, Matt was dancing with family having a great time Tuesday, I called 911 Having trained with the fire department when I was a beach lifeguard, I have a tremendous amount of respect for those called to 911 response duty So I don’t call 911 without considerable… Read more

I so love Matt’s family, I really do Yesterday, we got word that Elliot’s band was playing at a casual venue in Marin Unfortunately, I had plans with Lori……so I asked Jenna to take him img_5515 He was in such good hands Everyone made Jenna feel so welcome, it was her first time meeting all… Read more

There is a lot going on right now Politics aside……in our little world…..there is a lot going on We went to the neurologist Friday The doc saw I had conversations with Matt’s primary care physician about the Redwoods, so he leaned into that a bit, brought the topic to the table to discuss I communicated… Read more

When we moved here in 2024, we leased the farm house we are in with the understanding the owners intended to move back in summer 2026 Their son would be graduating and they’d then be free to move back to Sonoma It seemed like a reasonable agreement to make given the uncertainty of our journey… Read more

Its been 10+ days since I landed a post here, all is pretty good, just a lot going on in Matt’s Village It was when I was packing for my trip to Charlotte area that I found the wandering abalone shell Matt moved it from the top of the dresser to the drawer, immediately under… Read more

I finally found the wandering abalone…… <–Back to Uncle Lewy Read more

Its been a few intense days, we got information yesterday from the vet that enables us to manage the situation Sheba has Intervertebral Disc Disease (IVDD for short) It is, I am learning quickly, a degenerative condition that impacts her lower spine, the section that is most affected by impact of walking up/down stairs, jumping… Read more

Our little girl Sheba has been hurting lately Saturday night, early Sunday morning she yelped out in pain We were on the brink of taking her to the emergency vet…..but as we began to set things in motion, she came out of it, walked around like normal The same pattern repeated Sunday night, Monday early… Read more

We went on a hike yesterday, exploring Jack London Park Maybe you have read a book of his, “The Call of the Wild” or “Sea Wolf” or many many others He was a pioneer in writing for a living and some of the things he did on his estate, ranch in Glen Ellen He lived… Read more

If Matt had an native American Indian name, it might be “One Sock” Like “Soaring Eagle” or “Little Bird”, his would be One Sock Whenever the opportunity allows, he is wearing only one sock This morning, like many mornings, he wakes up, looking for coffee He is wearing one sock After we get home from… Read more

I didn’t make too big of a deal about it, I just got Matt dressed and ready for his day We got in the car, I took a different route to get there When we entered the property, he didn’t say anything much When we got out of the car, he said “why are we… Read more

Part of the respite plan is to have Matt go to Day Club 2 days per week I tried to get him to go several times, unsuccessfully, so I called in help last Friday Lo came for a short shift and got him up, out of the house, and to the club with me So… Read more

I started the Uncle Lewy blog in June 2025, having zero experience doing anything like this Now, there are 137 posts communicating our journey I was feeling things were getting a bit bulky, there were some issues that needed fix’n, things could be more interesting Mary said, “why don’t you ask AI to help you”… Read more

Accountability is important in any relationship, IMHO When you dial it in, it can be a beautiful thing, a thing easily taken for granted Add Uncle Lewy into the equation and it gets confusing Our situation, our marriage, has always been the merger of 2 independent people So in the early years we had to… Read more

That’s how many CPE hours I needed to log, take, before New Years I had this on my to do list all fall November I took 8 hours, so when I looked at it, in crises mode, second week of December, I still needed 60 hours Being a numbers person, I calculated how many hours… Read more

Today was a difficult day, says Pooh Do you want to talk about it? Asked Piglet No, I don’t think so That’s ok, says Piglet, I know what difficult days are like. I quite often don’t feel like talking about it on my difficult days either But goodness, Piglet continues, difficult days are so much… Read more

Its Christmas morning, quiet morning here, fresh air from the rain last night The place we stayed the last 2 nights is nestled in the redwoods, in Santa Cruz mountains Its, in a word, beautiful here, I love being face to face with nature, the elements (as long as those elements aren’t too hot or… Read more

This is my 111th post My one hundred and eleventh post (I just had to spell it out) When I started this in June, I had no idea if I was going to be able to keep it up I know I was desperately trying to shift my headspace to a new place We had… Read more

We had quite the week this past week Once our doc approved us for in home therapies, we have seen a physical therapist, occupational therapist, speech therapist and social worker It’s been overwhelming for Matt Many of them were assessments, so that a treatment plan could be worked up We could have started the actual… Read more