Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Symptom Series

  • Wandering and agitation

    Restlessness and agitation: LBD can cause a general state of restlessness, leading individuals to fidget, pace, or make repetitive movements. This can be triggered by anxiety, confusion, or even just a need to move around. Cognitive impairment problems with thinking, memory and decision making can lead to confusion and disorientation. This manifests as pacing as Read more

  • Delusions

    Individuals may misinterpret what they are experiencing and form false beliefs about their surroundings and the people in them. This is the hard part, this is the piece that hurts the most, is a stab to the heart Anyone who loves another enough to stand by their loved one thru thick and thin, be it Read more

  • disrupted processing

    In LBD, the brain’s visual processing systems which receive sensory information, and the recognition system, which interprets that information, are both affected. This can lead to misinterpretation of what is seen, heard or even felt. Yesterday morning, after I took an early work call upstairs, Matt came up and asked if they were taking him Read more