Uncle Lewy

Living out loud with Lewy Body Dementia

Moments with Lewy

  • Arts and craft project

    So this morning after breakfast and meds Matt seemed to embark on an arts and craft project First, he gathered 3 clean cloth napkins, to which he found and added a dirty sock, a pair of underwear…most likely dirty He wandered around looking, looking….. Then he found 3 old bread bags in the kitchen garbage… Read more

  • Sully walks

    Its 6:11 am, my quiet time I’m with my thoughts, my journal, my first cup of coffee, my herbal tea I am just getting snuggled into my corner, blanket in my lap, reading glasses on Deciding which insence I want for my morning Sully walks out, sees me from the kitchen Yesterday’s mock turtle neck… Read more

  • Crab

    Matt loves crab as much, we’ll almost as much, as I do I saw it at Sonoma Market, asked the butcher “Is it local?” “Yes” “2 please!” What a fun surprise to bring home to Matt I think At dinner time I out the crab out, melted butter, lemon, Caesar salad I ask “do you… Read more

  • Sully

    No one on the medical team helps with this piece What do you do when a 67 year old man affected by Uncle Lewy acts like a child? Do you get to treat them like one? If not…..then what? This morning I embarked on the daunting post holiday Sunday am refrigerator clean up Not just… Read more