Why

This is a hard journey. We are unintended students of a disease we didn’t want.

Who we were, we were travelers. Active hikers. Snow and water skiers. Adventurers. DIY kind of folk.

Uncle Lewy moved in and at first, we didn’t know it. He was planting problems in our life and hiding in the rafters like a mischevious Christmas Elf. Those were the hardest days, when we didn’t know what was happening. We used only the tools we had at our disposal to figure it out, which weren’t many because nothing like this had happened before.

Our marriage, only a little over a decade at the time, was at stake. For some reason I just couldn’t understand, I found myself being accused of having an affair. If I am accused of a crime, please just let me enjoy the benefits! But here I was accused, incorrectly, of cheating on a man I waited my whole life for. How in the world did we get here?

It became clear at the end of 2023 that it was Uncle Lewy playing his evil tricks. This isn’t a dementia like Alzehiemers. This is its own special variety.

Paranoia, delusions, hallucinations…..yeah, the big delusion that was the hardest, the affair. Delusions are so hard because the deluded really thinks that is going on and the accused is crying for understanding, crying out the truth. Wicked, evil.

Matt’s “figurer-outer”, which was so strong and powerful, got attacked. He struggles to do things that came easy before, things that may people looked to him to help them with.

So this is our journey. We are starting this blog about half way.

We hope this can help answer the questions of “how are you”, “how is Matt”, etc. As we discover things that may help to dive a bit deeper, we’ll add some things to additional pages and place them in the navigation at the bottom of the blog.

Please join us on this journey. I can’t promise it won’t be hard to read. Thank you for joining us on this journey.