Uncle Lewy

Living out loud with Lewy Body Dementia

Mornings

Mornings are hard around here, hard in the sense you never know what’s going to happen, how Matt will feel, when he will wake up, how grumpy, how “with it” will he be

Its 11:24am, I made his breakfast a few hours ago, but I can’t coax him into eating it

I did, after 4 attempts, get his most important morning meds in his mouth

Strangely, he takes his meds without water……chews on them

I always worry he is just holding them in his cheek to spit them out when I am not looking

I did find one pill the other day, in the bed sheets….so I know I am not crazy, he definitely pulls that trick sometimes

A couple of times this morning, say around 10ish, after he had gotten up and wandered around a bit, he went back to bed

I checked in on him after a bit, he was sound asleep, I couldn’t get him to wake up, he had gone back to slumber land so easily

We went to bed around 9:30 last night so its not like he had a late night yesterday, and he slept pretty soundly all night, as best I can tell

I left our bed around 2:30 in the morning and slept in the sunroom bed so I could get some solid uninterrupted shut eye myself

When he does get out of bed, he is often messing with the comforter, sheets

Its like he is trying to make up the bed…..but not able to execute that task

At some point he decides, I guess, it passes his test, as he moves along, either to start to fiddle with something else or crawl back in bed

Today Barb comes, her ETA is about noon, so I wonder will he be out of bed and have underwear on when she arrives?

Her challenge will be to get him out the door to go boxing which starts at 12:30……

Its so nice to have sister help, so very nice

Each sister brings different things to the table but all bring love, lots of love, support, understanding, humor

Most everyone else sees Matt in the afternoon, evening

Often folks say “he seems good” or ” he seems better”

Please know you are getting him at prime time

Its the morning that is the hardest these days, it used to be the evenings, now its the mornings

At this moment, I can hear that he is up….he’s making noise in the kitchen…quick visual check: he is messing with the recycle bin for some reason

Still no underwear on

He grabbed Kristen’s egg custard dish, put an empty egg carton from the recycle bin in it and put it on top of the puzzle we just completed

The start of another arts and craft project?

We, the puzzlers, being the caregivers and me, take turns working the puzzle as we wait for Matt to wake up in the morning or from a nap during the day

or just to kill time

I now went to find him, compel him to put some underwear on

Mission accomplished but only after he put his underwear on his head

I gave him a couple minutes looking like a bank robber then pulled them off gently reminding him underwear doesn’t go on his head

I don’t know why he grits his teeth, pretends to box me, when I just say, hey, why don’t we put some underwear on…..maybe its because I said that at least 4 times, it would probably annoy me too if someone repeated so often

It’s 11:41, he ate the bacon, not the eggs, found other things to put in his hands

I notice a measurable difference in myself this morning

I sit here typing the blog, checking on him from time to time, not getting stressed out like I used to, like I can as I hear noises, wondering what he is getting into

I see a tower now at the top of his placemat

Coffee cup, orange juice class, pill vessel…..all in a tower

Thinking breakfast was accomplished, I gave Sheba the rest as a treat: couple pieces of bacon and some egg scraps

Then, I see another plate, maybe mine, where he put other eggs on it and took it to the bedroom, so Sheba got another treat

He’s going to be Barb’s charge here in a few minutes……I plan on swimming a couple miles which will take me a while, allow me to escape for awhile

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