February 2026
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I didn’t make too big of a deal about it, I just got Matt dressed and ready for his day We got in the car, I took a different route to get there When we entered the property, he didn’t say anything much When we got out of the car, he said “why are we… Read more
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I started the Uncle Lewy blog in June 2025, having zero experience doing anything like this Now, there are 137 posts communicating our journey I was feeling things were getting a bit bulky, there were some issues that needed fix’n, things could be more interesting Mary said, “why don’t you ask AI to help you”… Read more
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Its amazing how important these have become lately An hour difference in the morning to me, even 2 or 3 hours, isn’t that big of a thing But for Matt, it seems now to make a huge difference Left to his own rhythms, he seems to like to wake up around 9:30 or 10ish, at… Read more
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Ever changing………… We now have bed rails on both sides of the bed I have to get used to them too For some time now, he has been up and down for a portion of the night Typically its a bathroom destination, some times its a destination in the bedroom only he understands So far,… Read more
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Matt’s environmental dependence activities in the evening seem to have calmed down a bit I wonder if me letting him clean the dinner dishes helps I say “clean”, what I really probably truly mean is letting him go through the “act” of cleaning, being helpful He will wash them in the sink, sort of He… Read more
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Things seem to be in a relatively good place right now Our in home therapy’s will discharge fully today We have had the benefit of 8 weeks of help from physical and occupational therapists, nurses, social workers Soon we will begin to experiment with a new program Medicare launched in 2024 called GUIDE which sole… Read more
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We have had a visitor he last few days Sheba has had a few slumber party nights Coco, our next door neighbors standard poodle, has been with us It was supposed to be a single over night stay…..but life happens A trip to the hospital happened for our neighbors So Coco and Sheba have been… Read more
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No pun intended, but certainly one noticed, ever since I got back from Virginia, where the deep freeze happened, I feel like I have taken a chill pill It really came into focus this morning Matt was knocking about the kitchen, banging, clanging Typically I would spring up to supervise But I realized this morning… Read more
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Matt’s birthday party was a success Success being measured in his positive anticipation, number of smiles from him, all the love that surrounded him Thank you to everyone for being there We came home and he crawled right in bed, stayed there most of Sunday too I admit, I was equally exhausted Having the crab… Read more
Uncle Lewy 