Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Arts and craft project

So this morning after breakfast and meds

Matt seemed to embark on an arts and craft project

First, he gathered 3 clean cloth napkins, to which he found and added a dirty sock, a pair of underwear…most likely dirty

He wandered around looking, looking…..

Then he found 3 old bread bags in the kitchen garbage

All this in his hands, held close to his heart, he wandered and looked around a bit more, pride of possession very real here

He wandered back to the kitchen, found a ball jar with butter that ai keep butter at hand. at room temp, added that to the mix

Then decided to discard the butter jar into the recycle bin (I will pull that out in a bit)

He had all this mounded on the kitchen counter

He looked in a few kitchen cabinets, drawers, as if hunting for that next perfect thing for his piece of art

Then…..he worked on putting it somewhere, not sure if he knowingly or unknowingly was creating a treasure hunt for me

Empty handed he announces “If you need me, I will be retiring upstairs”

Ok I say, you will be upstairs

I think after looking quickly at the clock, Lo will be here in 5 minutes

A week ago, I’d have been all tied up in knots

But today, I am finding my sense of humor again, long lost

I shared this as it was developing and some informative pictures….she came back with prose:

The Kitchen Alchemist

He binds the crinkled plastic of the bread bags tight, to cottons heels and toes, a story yet untold

The napkins drape like sails across a quiet sea, white linen squares against the tangles, dusty grey

He loops the rubber bands and crowns a heavy spoon to catch the shadows of the rising afternoon

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