So a new phase begins

A phase that is trying to honor the new Matt, trying to meet him where he is

I know I don’t have all the answers for this new phase, it’s definitely way outside of my wheelhouse

All I can do is experiment, try things, take in advice of those who have this in their wheelhouse

We are initiating a personal caregiver 2 days a week

My hope is the one on one time with someone with experience, with this in their wheelhouse, will teach us both the way things need to be now

We are looking at folding in 2 days a week at a Day Club near by

The Day Club has activities and is staffed with folks who, again, have skills in their wheelhouse appropriate for my new Matt

This is a lot to integrate, we may have to slow down the introductions of things

I do know that the last few days where he spent 80% of the day in bed isn’t quality of life, isn’t the best for him

We are building this support but we can’t forget to build in the thing he loves the most, hiking

So definitely weekends we need to hike both days, me and him

Maybe the caregiver can hike with him some, maybe wednesdays….the day I am thinking is a rest day

It’s a plan, it’s likely going to change, but it’s a place to start

This is the beginning of the solving of the problem statement I struggled so hard to define recently

It’s about both of us thriving as best we can in the midst of this journey with Uncle Lewy

I know it was killing our relationship…..I was reacting, not responding, not being the best I could be for him

These are important days for him, very important days

So taking some time to experiment with ways to make them better is worth it, necessary