Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

He fell out of bed

It’s something I could see coming

We talked to the occupational therapist about being worried about that

We lowered the bed by removing the box springs

The occupational therapist worked with him on techniques to get in and out of bed

He tends to sleep, for what reason I have no idea, on the edge of his side of the bed

Time and time again I try to wake him, encourage him to move closer to the middle

No, no, not to the middle middle, you gotta leave me room on my side!

As he tosses and turns, he ends up on that edge

So I’ve been worried for awhile now he might fall out

And he did, in the middle of the night Saturday night

Thunk!

He stands up, I turn the light on, his face contorted like a toddler about to let out a bone crushing wail

He hit his head, his hear, on the bedside table, it’s bleeding

We clean it up, calm him down, stuff a pillow between the bed and the side table incase it’s not the only time he falls out

Wow, it happened, he is ok

We will review this with the in home care team this week for sure

I think it scared him big time

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