We suffered a loss, Courtney moved out
For 2 months we had help, it seemed a good thing
But there are things outside of our control, things outside of our reach
For personal reasons she decided to go back to Kansas with no clear plan to return
It’s a big set back
I now know what it is like to have some freedom
Now it’s gone, a loss
I am grateful for the 2 months of help, I want to focus on that
I read once that gratefulness is the best tonic for stress, I choose that medicine
I choose to be grateful for having her here for 2 months, not to focus on the seas pool of loss
We did have a HUGE win Friday
Our shared primary care doctor asked if we had gotten Matt into Physical Therapy yet
I had followed up on the referral only to be told the only resource the system could offer was in San Francisco
As much as I love the city, driving from Sonoma to SF a couple times per week just wasn’t something that made sense
So I had been trying to call local PT offices and we had that as something Courtney was going to help me with
PT as well as speech therapy were prescribed by both his PCP and nuerologist
My support group recently bemoaned how hard it has been to get into PT
At our doc visit, I let her know what I found, my trouble getting that done
She had an idea: she asked Matt if he was driving
No, he hasn’t driven in over 2 years now (not that he wouldn’t want to if given the chance to be sure!)
So she qualified him for in home care for PT, ST, OT and a social worker
They will come to us!
Better yet, Sunday, less than 2 days after this win, my phone rang with the PT case manager wanting to come by that day
The next day, I hear from a speech therapist, the social worker
Beyond words here…….so incredibly helpful this is!
Ok, I need to spill some beans here, the visiting social worker always raises concern for me
The only thing I really have known about social workers is what I see in TV crime shows and movies
Social workers take babies away form folks wrapped up in a bad scene, or otherwise throw a skeptical eye on a home, tear it apart
I am learning the full scope of their function in society, but I am still a bit nervous about that visit
This will definitely be a learning path for me
Back to the win: having them come to us is, I can’t tell you how big, a HUGE win for us
The moment the doc suggested it, I started clapping my hands, a truly involuntary spontaneous reaction!
What we will be doing on the home front to replace what we had with Courtney remains to be seen
I found value in having someone else living here
Having someone else to talk to, have a conversation with
Another person to casually help Matt in the evenings when it’s the hardest
So we may look to rent out that en-suite out, to the right person
We may bring in home care workers
Probably in the new year
Next week will be a week of family time
And then the year is basically over
So I am grateful for short term positive experiences, doctors who really engage, finding a medical system that seems to be working for us, and mostly, for family who have been here for us, continue to be here for us, through all of this

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