Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

tight spring

Sometimes I feel like I am sitting on top of a tightly wound up spring

Ready to “poing” up instantly if I hear or see Matt do something unusual

Since he does unusual things a lot, I seem to sit on that tightly wound coil often these days

This morning I have been thinking about those triggers

About those things that cause me to act like a Jack in a Box

Sometimes its over a thing, a spoon, a bowl, chair, vase

Sometimes its a dangerous thing, like putting dishwasher detergent in the dogs food bowl

Or playing with the gas stove knobs

Boing!! Matt is headed in the direction of the front stairs….

Michelle is sleeping upstairs…..need to make sure he isn’t going upstairs to use the bathroom and startle her….

One response to “tight spring”

  1. Whoop! Thanks for catching the stair thing Cj. Witnessing Uncle Lewey first hand, his comings and goings has been remarkable, for lack of a better word. A whole lot going on and much to watch out for. I don’t know who its harder for, the patient, or the caretaker…, simply both. I admire your compassion and commitment to your Man. So many details, and… you keep fun and activities in your lives. Making it the best it can be. I love you. Be kind to yourself every chance you get. I’ll see you again soon. Hugs 💓

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