Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

Ernest

In our darkest moments

We don’t need solutions or advice

What we yearn for is simple human connection

A quiet presence, a gentle touch

These small gestures are the anchors that hold us steady when life feels too much

Please don’t try to fix me

Don’t take my pain or push away my shadows

Just set beside me as I work through my inner storms

Be the steady hand I can reach for as I find my way

My pain is mine to carry

My battles mine to face

But your presence reminds me I am not alone in this vast, sometimes frightening world

Its a quiet reminder that I am worthy of love, even when I feel broken

So in these dark hours, when I lose my way, will you be there?

Not as a rescuer, but as a companion

Hold my hand until the dawn arrives, helping me remember my strength

Your silent support is the most precious gift you can give me

Its a love that helps me remember who I am, even when I forget

Ernest Hemingway

This was shared by a member of a LBD list share that i have been a member of for over a year and a half

It helped calm me after this weekends troubles, allowed me to relax a bit

I imagine Matt saying this to me

Saturday, when he was recovering, just lying in bed still

I crawled in beside of him, just laid there by him for a bit

Ernest Hemingway’s words makes that choice, that quiet choice, seem right.

It’s Monday evening now, he is doing better

We went on a hike today, not the one from Saturday, but a gentler one

He wanted to go hike, not to go to boxing class

So we hiked, he did fine

He has eaten, had another protein shake, taken his meds both morning and evening.

So this was a temporary blip…..not a huge permanent change

I am relieved, greatly

One response to “Ernest”

  1. mentalitysensationallyfc14c86ab9 Avatar
    mentalitysensationallyfc14c86ab9

    I am sitting beside you right now, CJ, and holding your hand. 😘

    Liked by 1 person

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