Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

waiting

Thank you all for your comments and support of yesterdays post “On a dime”

Sunday Matt continues to sleep alot

He shied away from group activity….we still had friends passing through after the events of the weekend

With Corny’s support, I was able to be with all the friends who flew in for this, was able to make sure Mary had a terrific finale

She was pleased, called it “perfect”

Much joy shared this weekend

With Corny’ help, I didn’t have to choose, didn’t have to miss out, I am so grateful

It’s morning, Matt is still asleep

Tracy and Annabel had a very inspired suggestion yesterday that neither Corny or I had thought about, something to get him to eat: protein milkshake

It’s not an unfamiliar thing, but something we just didn’t conger up in our heads

Immediate store run, he sucked it down!

I am hopeful when he does rise, we will see more Matt and less Uncle Lewy

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