Uncle Lewy

Living out loud with Lewy Body Dementia

a very personal journey. Matt, CJ and Sheba….

This started spontaneously, part therapy, part keeping our peeps informed. I am finding my voice, evolving in this. The perspective is very much from my, CJ’s, perspective; the caregiving wife.

subscribe to follow…..comment to join us…..each eye that reads, is appreciated. This is a lonely making disease. Sharing moments is a bit of a sole suave.

update

Matt’s doing pretty good right now

Things seem to be somewhat stable

He boxed 2 times this week, trying to get a routine down

He had a great time with Barb last week while I was in VA

The next few days Corny will be with us, with him, as I pay attention to the retirement festivities for Mary

I think we have it all set to roll…..I have been pacing the prep so that I didn’t have an overwhelming list of things to do at the last minute

His new neurologist switched a med and I think that has helped

He still wears the same thing for days on end, gets grumpy when I sniff his arm pit, tell him he is stinky

I do need to grab a pair of shorts he has been wearing for the last 5 days…maybe more…..he has definitely been wearing them since Sunday….they were dirty then

Oh, I see he put on a pair of jeans today! Here is my chance!

I may soon need to do some wardrobe updating, things that are easier for him to manage

He is down about 10 pounds….so his pants are falling down, his belts don’t have enough holes…..

He often struggles with his pants buttons for much longer than before

Maybe elastic waists, draw strings

But he is ok, I have learned to look the other way, not push too hard or escalate a fight just because he is wearing a shirt with last nights ice cream on it

This weekend with all the people coming over Friday, through out the weekend, may disorient him a bit.

So grateful Corny will be with him, with us.

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